Another visit to St Georges Hospital today to get the result of the PET/ CT scan I had on the 19th August.
Great news from the Haematologist, that my cancer is stable enough that they will only need to check me every six months as they don't want to keep fill me with radiation every 3 months, like they have been doing since I finished my radiotherapy in November 2023.
It's a little concerning that my Rheumatologist asked me to ask the Haematologist if they have any objection to the two medications that he is proposing Methotrexate or Hydroxychloroquine and they have not responded to his first request on the 29th July and he made a further request at my last appointment with him at the end of August. Looking at my records, they could not find that they had answered his two requests, but told me that they don't have a problem with either medications, and would send him a note to that effect.
From the Autoimmune point of view my after two years I can make a fist again thanks to the steroids' which are controlling the pain and helping with the rheumatism in all my joints. My mobility and general fitness levels have improved.
My next appointment with my Rheumatologist is at the end of this month and my Autoimmune medication starts In October and the steroids will be reduced as the new medication hopefully starts working, I have another appointment booked for November so tweaks can be made to the balance of steriods to Methotrexate. Hydroxychloroquine has side effects that can affect the eyes and at my last diabetic eye exam it transpired that I have the start of cataracts that could be because of the steroids, and I now need to have my eyes checked with at a special (Optical Coherence Tomography) OCT Digital surveillance clinic every 3 months to monitor what's happening with my eyesight.
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