PET Scan At The Royal Marsden This Afternoon

  

This afternoon I went for my fifth PET scan. I had one at St Georges when I was more mobile and before having the Radiation treatment last year and this was be my forth at the Royal Marsden in Sutton they have been spaced every 3 months.

The last Scan showed that the hot spot showing where "George" the tumour AKA a Solitary bony plasmacytoma of the left mandible had been busy eating bone and teeth roots away, was no longer hot and I was informed I was stable.

It appears that terms of various stages of Remission which is the term for the decrease in or disappearance of signs and symptoms of cancer, of Partial Remission & Complete Remission are not being used these days. 

But I'm happy with stable, and dormant, I'm on the greenside of the grass and I now have a grandson to love and care for, and a great reason to want to be alive, and enjoy every day. 

I have multiple sites of polyarthropathy which literally means "disease in many joints" for which I have been referred to the Rheumatology department and have had additional X-Rays of all my joints, specialist blood tests and specialist CT scans of my hands and wrist. It's not gout its an autoimmune disease of some kind but as with George the tumour they are having difficulty giving it a name.  

The latest PET Scan Report will be available in 3 working days. However because I'm not currently receiving Radiotherapy Treatment from the Royal Marsden and effectively my consultant at the Haematology Department at St Georges has requested the test, they will not upload the report to the My Marsden app which holds my medical information.

I find this completely insane, I have to request a copy of the report about me from my haematology consultant or request it under some kind of freedom of information protocol from the Subject Access Request (SAR) Team at the Royal Marsden. 

My appointment with the Haematology consultant is in another month, and for my mental well being I want to know what the report says as soon as possible. If George (my Tumour)

I know the cancer will still be in my body and having had the Solitary Bony Plasmacytoma that if and when the cancer next presents itself it's likely to be in a form of Myeloma.  

From my point of view I just want to know which way my path is going. I would like sight of the report so I can inspect it and have logical sensible questions to ask when I see all three of my consultants.